What is CF
Cystic fibrosis (CF) is the most common life threatening genetic condition in Australia - and there is no cure. How many people are affected by CF? How much does it cost to support someone with CF? What tangible support does CFQ provide? CFQ provides welcome support to members through:
CF is the most common life-threatening condition in Australia. It affects more than 3000 men, women and children nationwide, including 850 young Queenslanders.
What impact does CF have on individuals and families?
CF is a degenerative condition that affects many of the body's systems, including the lungs and digestion. It is uniquely devastating to families, and children with CF require daily physio and medication simply to survive. When a child is diagnosed with CF, generally shortly after birth, they begin a life faced with an insidious, genetic, life-inhibiting disease that has no end in sight. The commitments required to ensure the child receives the therapy, treatment and support necessary to maintain their health is extraordinary.
What is the outlook for someone with CF?
There is no cure. Children with CF live to an average age of 37, following advances in medical treatment. This increase in life expectancy has led to new health challenges, such as CF-related diabetes and osteoporosis.
The cost of providing services to someone suffering with CF is currently $1366 per person, per year, or $3.74 a day. Just 46c per day is provided by the government (less than 12%), leaving a shortfall of $3.28.
a) emotional support, through counseling, sibling camps and respite programs
b) practical support through equipment, hospital transfers, physiotherapy and accommodation
c) special support for children during hospital stays
d) advocacy and education programs, and research
